My
earliest memories of digestive problems are probably when I was about 11 and
what doctors described as colic (something which I’d also had as a baby). I
vaguely remember being given some anti-spasmodic drugs, but that was all. Then
there was an episode of right-sided tummy pain which was described as a
grumbling appendix, but this settled. The worst of my digestive symptoms coincided
with my menstrual cycle and I remember spending at least one day per month in
the school sickbay with a hot bottle in agony with coinciding period pain. My
gut symptoms otherwise did not persistently appear until I was a young adult in
my early 20s.
Endometriosis and
Bowels
I
was diagnosed with endometriosis in my mid-twenties following a diagnostic
laparoscopy, and there is no doubt in my mind that this continued to badly
irritate my gut – although I never had endometriosis that migrated to my colon
as can happen for some women. The pain, however, was unbearable and there were
times in my early 30s when I was in fact hospitalised for pain management.
Eventually I was put on drugs that artificially stopped my periods and I was on
these for a number of years until I decided that in the event I was definitely
not going to have children that in agreement with my doctors, I would prefer to have a hysterectomy which
happened in 2014 in my 40th year. I underwent a total hysterectomy
(removal of ovaries, uterus and cervix) – the outcome of which contributes to
my on-going story. I write about my endometriosis here: http://laparoscopystory.blogspot.co.uk/
My
gut problems started to increase again. By now it is 2011 and I was in my late
30s. My periods were still artificially stopped, but I was suffering increasing
problems with constipation and tearing pain on defecation which turned out to
be the result of an anal fissure which was surgically repaired, yet problems
persisted upon evacuation and I was given a colonoscopy which showed I had mild
diverticular disease – yet I was very young to have diverticulosis. I then went
on to have three episodes of full-blown diverticulitis requiring hospital
admissions for IV antibiotics. I had long since stopped smoking, but was often
experiencing a feeling of being overfull requiring regular anti-sickness
medication and I would often feel that my guts were ‘loaded’ which was borne
out by plain x-rays which would show a loaded colon – more often coinciding
with episodes of diverticulitis. I had colon transit tests conducted – which
involved stopping laxatives and eating three different pills (one each day for
three days), which contained shapes that would show on plain x-ray. My test
result was normal with some faecal matter remaining in the rectum only. In
early 2014 I had my total hysterectomy and then things progressively worsened.
In addition to gut problems I was diagnosed with hypermobility Ehlers-Danlos Syndrome and other conditions followed including depression, Fibromyalgia and Postural Orthostatic Tachycardia Syndrome (PoTS). I documented a great deal of my journey in physiotherapy in the following blog: http://danceinjuryrecovery.blogspot.co.uk/
Finally, I am also a several times published author with books about Hypermobility, Hypermobility Spectrum Disorders, hypermobility Ehlers-Danlos Syndrome and also the Bowen Technique. I am a Bowen Therapist and have a busy practice in King's Cross Central London. Full details about me can be found here http://www.bowenworks.org/research.html
I am proud of my achievements despite my very obvious health complaints.
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